Remembering a dear friend

Today marks the death of one of our most beloved friends, Robin Klauss, at the heartbreaking age of 29. I remember clearly when, during one of our countless karaoke nights which were usually filled with joy and laughter, she revealed the news of her cancer diagnosis. During the previous weeks, she had noticed a small bump on the back of her neck, which she thought might be a spider bite. But the bump wouldn’t go away, and eventually she started noticing a decrease in mobility in her neck and arm. After a visit to the doctor, she was told that it’s not a spider bite, but cancer  – a tumor in her neck that had already begun to invade her vertebrae and spinal cord.

During her experience with cancer, she wrote a few brief posts on her LiveJournal account, which I thought I’d re-post here, since that account is obviously no longer maintained, and will likely be shut down eventually. Here are the posts in chronological order (take note of the startlingly fast progression of the disease):

Jun. 18th, 2008
I’ve been diagnosed with adenocarcinoma of an unknown primary. Being an unknown primary it’s automatically labeled stage IV. Thought you might like to know.

Jun. 19th, 2008
My throat hurts so bad from the radiation. I feel like there’s this giant scab on the back of my throat and that I’m swallowing steel wool. The radiation oncologist that is on-call tried to call in a prescription for some kind of numbing something or-other but the pharmacist doesn’t have the lidocaine or whatever to mix it. 🙁 I tried to use chloroseptic spray but I couldn’t get it far enough back (and it tastes like shit). I so fucking hate this.

Jul. 2nd, 2008
So, today I had my 1 month follow up after the radiation surgery. On the bright side, all three of the docs I saw today were ecstatic about my progress. The neuro-oncologist about fell out of her chair when she was my arm movement was back. She said I am “the poster child for stereo-tactic radio-surgery.” 🙂 No chemo yet. 🙂 I have another follow up in 2 months to see how the tumor is doing. So, if it’s still there, then maybe chemo? No clue. I am having some pain at the top of my head on the right side. My medical oncologist said to keep an eye on it and let him know if it gets worse or if I notice any new pain. The main goal is to keep an eye out for any new metastases. However, the pain I’m having on my left side may be due to how the tumor destroyed the C3 and C4 vertebrae. There may be instability in my neck and the ligaments may have relaxed. Whatever that means. My neuro-oncologist ordered 6 x-rays of my neck and will be presenting my case to a spinal tumor board tomorrow to see if other doctors and neurosurgeons think I should have surgery on my neck to help stabilize it. The last thing I want is surgery and to miss work, however, I am also completely terrified that I will crack my neck because of how fragile it is. I doubt I’ll find out what she has to say tomorrow, hopefully on Monday.

Jul. 15th, 2008
Yesterday I had an appointment with a neurosurgeon regarding strengthening my neck. First, and most importantly, he was really hot. His PA wasn’t bad looking, either. Lucky me! Second, I need to have neck surgery next Friday, July 25. He said the when the cancer invaded my C3 and C4 vertebrae, it replaced bone with cancer. So now my neck is slowly collapsing to the right side and fracturing because there’s nothing there to support it. Surgery doesn’t have to be done ASAP but much sooner rather than later. Basically, if I don’t have the surgery, my neck will break. He said something about putting mesh cages and bone graft or something in the destroyed vertebrae. There will be two incisions, one in the front, then they’ll flip my fat ass over and then another in the back. I don’t know how big the front incision will be but he said the back will be about 4″. I’ll spend 5-6 days in the hospital and about a week in rehab and then recover for 2-4 more weeks. Yup. I’m a lucky girl!

Aug. 1st, 2008
I had the surgery last Friday. The surgery itself was over 11 hours long. They wheeled me away at 7:30am and my parents didn’t get to see me again until around 9:00 that night. My mom said, for some reason, the surgery didn’t start until 9:30ish but I only remember them wheeling me away, asking me a couple of questions and being in the operating room for about 3 minutes and I can’t remember anything else. For some reason hot doc didn’t do the mesh cage thing he was talking about and instead did metal plates and screws. This will make it a blast to travel. I’ll be setting off metal detectors like a freakin’ terrorist. Okay, it won’t be that bad. He did say that the plates are not supposed to set off metal detectors but I will have some card to say that I have this stuff in my neck to get me out of jail. After surgery they checked my breathing and I wasn’t breathing on my own so the intubated me with a different/smaller kind of breathing tube and I was unconscious in ICU until they woke me up to extubate me on Sunday morning. They didn’t move me into a regular room until Monday afternoon and I was finally discharged Wednesday afternoon. I didn’t have to go to rehab because 1.) my pain is negligible and 2.) I’m moving surprisingly well. Hot doc took a bone graft from my right hip and, right now, that’s what hurts and makes life difficult. I freakin’ walk like Frankenstein’s monster because I have to take it easy. My throat is also killing me, not only because of the intubation, but also because of the surgery. Hot doc said he would have to move my esophagus aside to be able to get to the vertebrae and the pain is normal and should go away soon. It definitely is getting better every day but it still hurts like hell. I have to wear a neck brace at all times except when I shower or eat. I can’t bend or twist my head and no lifting anything over 10 pounds. I’m recovering at my parent’s house, where I’ll be for the next 5 weeks. 5 weeks! Agh! And I can’t drive because I can’t turn my head so I am literally depending on them for EVERYTHING! I feel like a 2 year old. My mom makes my food and does my laundry and they’re both there when I go for a walk because they need to be there in case I fall or something. Because the biopsy was so unclear, hot doc removed some of the tumor and sent it off to pathology. Hopefully it will tell us more about what kind of cancer this is and the best way to treat it. He definitely thinks chemo is a good idea, so that will be starting soon. Everyone keeps saying I shouldn’t be so sure that it will be the kind where I’ll lose my hair, but I’m pretty damn sure it will be. I wonder if bald is is this season? Also, I have to renew my driver’s license in September… What will it say under hair color? Bald?

Aug. 24th, 2008
So nothing new has been happening. I was hoping to be back home this weekend but I’m still at my parent’s house. Hopefully I will be back in C-bus next weekend. The incision on the back of my head isn’t healing well. It seems like a couple of stitches popped before it was healed so now I have a hole in the back of my head. My dad said it’s slightly smaller than a dime but it’s not really healing. I saw my hot neurosurgeon on Tuesday because of it not healing. He had us put packing in the hole for a few days and now we’re doing this wet/dry thing where my mom has to clean the hole out with saline and then put dry gauze on it. We’re supposed to do it 4 times a day. He wants to see me again tomorrow and said that he didn’t want me to go back to work yet. I’ll find out tomorrow if he’ll let me go back to work next week. I really don’t mind seeing him again. He’s so freakin’ hot! He called me at my parent’s house yesterday morning to see how it’s healing. He really had to do some searching because I changed all of my phone numbers in my chart to be my cell, house and work numbers. I really have no clue where he got there number. And he said he wants to see me when I have my next oncologist appointment in September. Then I’ll also see him when I have my next follow up with him in October. I think he’s just smitten with me and he’s too shy to make his move. Okay. I’m delusional but it could happen, right?

Sep. 8th, 2008
I went in for my three month follow up today. The tumor has grown 1 cm since the beginning of July and it looks like some new lymph nodes are involved. My oncologist wants me to have a PET scan to see if the lymph nodes are really involved with the cancer or if they’re just inflamed from the surgery. He offered me three options to deal with the cancer: 1) do nothing, which is not an option at this point, 2) some kind of clinical trial that involves one type of chemo, given once every three weeks, and a daily pill that is used to treat TB, 3) a chemo cocktail that is three different kinds of chemo given at once. The clinical trial will waste too much of my FMLA time. I only have about 5 weeks left. The trial is divided into 2 different phases for a total of 37 days straight. Out of those 37 days, I would need to be at the hospital for at least 13 of the days. That’s not including days that I feel too tired or whatever to go to work. Following the 37 days, it would be just chemo once every three weeks until my doc says it’s done. I don’t like the idea of wasting all of those FMLA days. That will leave me with about 12 days for chemo after the first 37 days and for days I don’t feel well or am too tired. My mom thinks I’m choosing work over my health but she fails to remember that it’s because of work that I have health insurance to pay for all of this. If I lose my job, I lose my health insurance. Also the chemo is only given on Mondays. That leave no time for me to recover before I have have to drive 2 1/2 hours back to Columbus. So I’m opting for the third choice, the three chemo cocktail. It’s also once every 3 weeks but it doesn’t require the time commitment the trail does. I am going to wait to get a second opinion. I want to see a doc at the James but I’m having a hell of a time getting in to see someone. I would much rather have chemo here and recoup at my place. My job this week is to be a pain in the ass and call every doc I know at the James to get someone to refer me to a medical oncologist. Hopefully I won’t be dicked around.

Sep. 10th, 2008
I was able to find an oncologist at the James! I called someone, who talked to someone else and said, “Oh, yes, I remember talking to Carrie about you before. You mean no one ever called you to schedule an appointment?” *head desk* So I’m totally not going to go back to see that guy in Cleveland. It works out so much better for me to see the oncologist here. I have to take a whole day off work for a 30 minute appointment, versus just a couple of hours. And I’ve already seen a radiation oncologist and a neurosurgeon at the James who have said in the past that they would take care of my 3 month check-ups, if I want them to. What the Cleveland oncologist said is that this thing will never go away. We can only hope to decrease or maintain the size of it before it spreads further. Fantastic. With my birthday coming up it makes me wonder, how many more birthdays will I have?

Sep. 24th, 2008
I finally got to see the new oncologist at the James today. He wants me to have a PET scan tomorrow and start chemo on Friday. When I told my mom and my co-workers everyone had the same look of “holy crap! so soon!” on their faces (well, in the case of my mom, she said it). It’s about time. I’m in so much pain. The pain killers I have stopped working so well last week. I hate taking them and I’m totally afraid I’m going to get addicted to them but I really do need them to function.

She didn’t do any more writing after that, likely because of the effects of the pain killers or the chemo. And of course we hardly saw her anymore because the medications and the pain kept her virtually immobile at home, and cared for by her family.

In her second-to-last post, Robin asks how many more birthdays she would get to celebrate (she had just turned 29). The answer turned out to be zero. The cancer would claim her life just over a year after the initial diagnosis. That’s the cruel, cold, indiscriminate nature of this disease. Once we get past the bewilderment of contemplating that this could happen to any of us, all we can do is cherish every moment we get with our friends and loved ones, and remember the happiness and warmth that Robin brought to our lives.

Here is Robin during a random night out, expressing what would later become her response to cancer:
(taken from my crappy Motorola phone at the time)

The open-mindedness of skeptics

Today I’d like to briefly discuss the issue of open-mindedness, since I grow more and more alarmed by the rate at which this issue comes up in debates between skeptics and “believers” in alternative medicine, religion, the paranormal, the supernatural, and all sorts of other products of human imagination.

At this point the astute reader might point out, “Aha, you’re already presupposing that these things are products of imagination, so your mind is already closed to other options!” This is not the case. I believe that these things are products of imagination because that’s what they appear to be, based on all available evidence, so they are very probably imaginary. Is it possible that they are real, and not imagined? Of course! Show me evidence that is convincing enough (that is, evidence that’s as grandiose as the claim itself), and you’ll make me a believer (that is, you’ll make me believe that your claim is very probably real)!

I have changed my mind regarding various claims plenty of times in the past, precisely for this reason: I was shown convincing evidence (or found it myself) that made me reverse my views on a particular subject.

A brief analogy. Okay, not so brief.

When I was younger, I used to believe that I exerted some sort of energy that made street lights turn off exactly as I would drive underneath them in my car (this is apparently a common illusion). This didn’t quite sit well in my mind: why me? Am I really that extraordinary? Why doesn’t every driver cause street lights to go out? Then I decided to research the facts: I found out how street lights work, and I read up on some of the workings of human psychology, namely selective memory. And before long, I understood that the light bulbs are on a duty cycle (they periodically turn on and off to prevent overheating), and that my mind was assigning special significance to the times when a street light happened to turn off directly above me!

Did I feel saddened by the notion that I was no longer extraordinary? Maybe for a brief moment, but the reality check was soon overtaken by a feeling of enlightenment. It felt good to understand the real reason behind a phenomenon that was poorly understood (by me, at the time). Instead of living with a superficial pseudo-understanding of how things work (where I am endowed with street light powers), I felt extraordinary because I gained a much more meaningful understanding of the real world.

So what does this have to do with an open mind? Well, consider this. Suppose I meet a person (let’s call her Alice) who absolutely insists that the street light phenomenon is actually genuine — that people do, in fact, emit an energy field that causes street lights to turn off above them.

When I present all the research I did regarding street lights and human psychology, Alice dismisses it as inconclusive and insufficient. When I say that there is a perfectly good natural explanation for the phenomenon, Alice claims that her explanation is better because it feels right to her. She gives me a list of testimonials from her friends who have also experienced the phenomenon, and says, “they can’t all be wrong, can they?” When I show her the mathematics that proves how statistically likely it is to see a street light turn off during any drive, she insists that the number of times that she’s seen it can’t be a coincidence.

When I ask her to show me peer-reviewed publications on the reality of this effect, she says that she doesn’t have access to them at the moment, but assures me that they exist. When I ask her if she would be willing to perform a blinded test of her abilities, she refuses, saying that the street lights turn off only when she doesn’t think about it or least expects it.

When I ask her to explain the physical processes that she thinks are behind the phenomenon, she begins talking about quantum mechanics, saying that all particles are entangled, that our intentions can change the course of quantum reality, and that we, as observers, can choose the outcome of wavefunction collapse.

When I try to correct her naive understanding of quantum mechanics, she says that science doesn’t have all the answers. When I tell her that I used to believe in the same explanation that she does, except I learned better, she proceeds to state that I am hopelessly closed-minded and, with a tone of pity, says that I will never be able to control street lights like she can, because I don’t believe in it enough.

Sound familiar?

While the above analogy is a bit of a straw man (or straw woman in this case), the vast majority of debates between skeptics and “believers” take on exactly the above format. The believer, frustrated by the skeptic’s unwillingness to accept her extraordinary claim without sufficient evidence, resorts to calling the skeptic closed-minded.

Let’s think about the definition of an open mind. I would consider an open-minded person to be someone who is able to objectively evaluate new evidence, and integrate it into his or her framework of theories regarding the world. “Objectively” evaluating evidence means evaluating it regardless of personal interests, emotional appeal, profit motive, or peer pressure.

It is abundantly clear that, in the above scenario, it’s Alice who is closed-minded, because she is either unable or unwilling to honestly evaluate the real reasons for the street light effect.

However, the question remains: Am I closed-minded for being unwilling to consider Alice’s theory that she has psycho-kinetic powers? Well, that’s a bit of a loaded question. First of all, Alice does not have a theory that explains the effect. Saying that the effect is caused by telekinetic powers is a bit like saying, “It’s magic” — it doesn’t constitute an explanation, because it doesn’t explain how the process actually works.

Alice would have to define what exactly her powers are, their range and intensity, and how these powers can be reconciled with currently known laws of physics. If she claims that current physics are insufficient to explain her powers, or that she has tapped into a “new” law of physics, she suddenly has an entire world of physicists to contend with, all of whom agree on well-established physical laws that preclude such powers.

The only thing that would pique the interest of the world’s physicists is a simple test — an experiment that shows, repeatably, that the laws of physics do not apply to Alice. Is that too much to ask? As long as such an experiment does not exist, we have no reason to believe that Alice has any powers except an overly active imagination.

Replace the street light effect with any other extraordinary claim (energy medicine, life-force, zero-point fields, astrology, dowsing, etc), and the conclusions turn out the same: if the claim is real, it would undermine one or more laws of physics. In any case, the evidence for such a claim would have to be at least as spectacular as the claim itself.

In short, I am open-minded to any new evidence, whether it supports my worldview or contradicts it. However, I have some sensible constraints on what passes as “evidence.” As the immortal saying goes, I have an open mind, but not so open that my brain falls out.

If you are making extraordinary claims that are not supported by our current theories about the world, all I ask is that you demonstrate something, anything, that supports your claims, and shows that whatever you’re demonstrating isn’t just in your mind.

DiskDigger – Version 0.8.0

Today I released the latest version of the DiskDigger data recovery utility. Highlights from this version include:

  • Ability to actually undelete files (complete with file names) from the following file systems: FAT12, FAT16, FAT32, NTFS, and exFAT.
  • Split the program into two modes of operation: undelete and deep scan (lovingly dubbed “dig deep” and “dig deeper”).
  • Built in a better manifest file that automatically asks for admin privileges in Vista.

As far as I can tell, DiskDigger is the first utility (at least the first free one) that can undelete files from exFAT partitions.

So what are you waiting for? Download it and try it out!

Reiki clinic at MetroHealth

In local news, the Plain Dealer reported on the “Hands to Heart” Reiki clinic at MetroHealth hospital. The same reporter wrote about her own Reiki session a day earlier.

Finally! A clinic dedicated to administering placebo. Naturally, we have to give it an Eastern-sounding name, and plenty of positive testimonials, and it becomes a virtual gold mine! Of course, they assure us that the sessions at the clinic are free, but what about when their clients become hooked, and start wanting private sessions? And what about the peddling of CDs, books, and other merchandise along with the sessions?

While the article felt like it was trying to do its best to remain neutral, there was definitely a strong hint of implied acceptance of Reiki for what it claims to be. There were several points in the article that would threaten to mislead an unknowing consumer into thinking that Reiki is a plausible treatment.

From the article:

The hospital’s clinic offers unconventional therapy for those who have found conventional medicine only goes so far.

Only goes so far?! And how far, pray tell, does Reiki go? This would imply that Reiki somehow goes beyond “conventional” medicine. If this were true in any sense, then Reiki would become conventional medicine!

The article is a bit deceptive in a few other places. It says,

…[R]eiki has found acceptance among the hospital’s nurses as a complementary therapy. But the doctors are “a bit of a more challenging group to get,” she said, because there are no medical studies that prove [R]eiki’s effectiveness.

What it should really say is, “There are studies that tested Reiki’s effectiveness, and found no effect.“. Here’s one, for good measure.

The article also fails to mention that, if the principles behind Reiki are true, they would invalidate most of our laws of physics and our understanding of biology and physiology. So why haven’t any “Reiki masters” been invited to Stockholm for the Nobel ceremony?

I applaud the doctors for being “hard to get” with respect to this foolishness.

My Conversation with God

I had a conversation with God last night. Really, I did! I was just re-reading through portions of Neale Donald Walsch‘s wildly popular Conversations with God series, and I couldn’t help but wonder how any self-respecting God, if one exists, would allow such lunacy to continue. And, wouldn’t you know it, God responded!

An uncommon dialogue

DB: Son of a bitch, this stuff is giving me a migraine…

God: Hello!!! This is… Gaaawwwwwwwwwwd.

DB: Holy crap, you do exist! Silly me, I thought you were a logical impossibility!

God: Oh, I am an impossibility. Of awesomeness!

DB: But how do I know it’s really you?

God: Well, I can’t really prove anything to you at this point. Maybe it’s really me, or maybe it’s a drug-induced hallucination. And the headcheese hoagie you ate for dinner can’t be helping, either.

God's imageDB: You know–

God: I’m–

DB: Oh, sorry, go ahead.

God: No, no, you spoke first.

DB: I’ve actually had a few burning questions to ask you, now that you’re here. Do you mind?

God: Burning questions are better answered by Satan. Get it?!

DB: Wow… that is just awful.

God: I’m just joshin’ you. Go ahead and shoot away.

DB: You know who Neale Donald Walsch is, right? He has built a multi-million dollar empire from his “Conversations with God” books.

God: Yes, I’ve heard… such things.

DB: Well, was it really you speaking to him? Because, forgive me, but it sounds an awful lot like Walsch’s conversations are between himself and his gigantic ego, instead of a deity like yourself.

God: You’re absolutely right. I’ve never spoken to him in any way, not in print, writing, thoughts, or conversation. He is a dangerous cult leader, and I’m amazed that more and more people keep on feeding his ego trip. You can quote me on that.

DB: Oh, good, I’m glad I’m not the only one who thinks so. It will be interesting to see what my readers think of your opinion on this, o Lord. So, let me ask you this. How can I make a million dollars from this conversation that we’re having right now?

God: It’s simple! People are idiots. I created them that way, because I felt like it. All you have to do is sprinkle this conversation with some positive messages, appeal to their fantasies and desires, and subtly inject your own agenda at your leisure! Tell people that, by just reading this conversation, their lives will improve and become filled with happiness. Also, use words like “Eastern” and “alternative.” Then all you do is sell, sell, sell!!! Write books, have seminars, workshops, retreats, cruises, and charge as much as you want! They’ll pay, and beg for more! Make sure to nickel-and-dime at every turn, so they get used to paying whenever they hear your name. And of course, make sure to copyright everything you do, and insist that you’re the only one with the true message.

DB: Awesome! But what if people’s lives don’t improve from reading this conversation?

God: Tell them it’s their own damn fault. Use an excuse like “you create your own reality” or “you are your own god.” That will shut them up real quick, and give them some much-needed guilt, so they’ll buy even more stuff from you! If they still insist that their lives aren’t changing, wave your hands in the air and tell them that they haven’t “opened their mind” enough, and offer to clear their mind for an additional charge.

DB: Wow, it sounds so simple when you put it like that!

God: I know, right?! Oh, and one more thing. When selling this stuff, you really have to stand out, or no one will notice you. You have to be really flamboyant. I mean extremely flamboyant. Flail your arms around when speaking, and dance around on the stage. Change the emotion in your voice randomly from one sentence to another, just to throw them off.

DB: But what if people accuse me of being a fraud?

God: So what? Just tell them they can believe whatever they want! Maybe you spoke to God, maybe you didn’t! Here’s a good one to throw at them: “we’re all god!” I’m God, you’re God, this rock is God! Did you talk to a rock today? Boom, you talked with God, and I just blew your mind! Is that profound enough for you? How about them apples, Debbie Downer?

DB: Okay, let me give it a try real quick, and tell me if I’ve got it.

God: Alright, let’s see what you’ve got.

DB: [Clears throat] Umm…

Eastern religion… is… awesome. You people are… fantastic. Leading a healthy lifestyle is… great. Come to my workshops and, for $500, I will repeat these platitudes to you!

God: No, no, no, you have to do a lot better than that! First of all, you can’t just ask for money. What are you, a wimp? You have to demand money. You have to make them assume that they need to give you money to get anywhere!

DB: [loosens up] OK, let me try again…

We’re all connected! If you try hard, you can accomplish things in life! Don’t harm animals! America! Sex is good for you! Think about money and it will come to you! You must give me $1200, so that I can show you how to make $500!

God: Ehh… good, not great. Here, take an example from the master. Now watch what I do, and listen closely: I’m just going to speak naturally, and say whatever comes to mind… [Clears throat]

According to the scientifically proven Law of Attraction, which we all know is true, quantum reality can be manipulated by something as simple as your thoughts! Since your consciousness exists both in the physical and spiritual realm, according to scientists, you can consciously use quantum effects like entanglement and superposition, to literally change the world around you. Once you master this simple skill, which we’re all born with, you can attract prosperity, health, love, power, and anything else you want in your life.

At my upcoming workshop, for an introductory fee of $10000, I’ll teach you to channel your life-force energy through scientifically verified quantum field points on your body, allowing you to heal yourself and others, enjoy a better love life, create wealth, and finally be the master of your quantum world. Also, for an additional $200 per 10 minutes, I will hold an attunement session with you, where I will use my mastery of the quantum field to unblock your chakras, one at a time, and re-enable the flow of magneto-electric spiritual energy throughout your body!

…You see? Damn, I’m good! I didn’t even have to think about that! The bullshit just flows so naturally. It’s a gift, really, but you too can learn to talk like this, if you keep practicing.

DB: Wow, I am speechless. I threw up in my mouth a little, but that is just brilliant! God, you’re a genius. Let me just write this all down…

God's imageGod: Well, what did you expect, a retard for a god? Would a retarded god sacrifice himself to himself to atone for the sins of his own creations?

DB: Hmm… why don’t we save that question for a future conversation?

God: Absolutely! Feel free to contact me anytime. You know how to reach me!

DB: Actually, I’m not sure how I reached you. You just started talking to me.

God: Exactly! Cheerioooooo!…

DB: Wait, just one more thing! How can you, in good conscience, allow people like Walsch to continue to do what they do?

God: How am I supposed to do anything when I don’t exist? Jackass.

Money, please!

So there you have it, dear readers, straight from the horse’s mouth. Neale Donald Walsch never had a conversation with anything but his own giant head. I spoke with the real God, as you can plainly see above. So… give me money. Come on, cough it up.